In the wee small hours of last night's attempt at sleep I had the latest in an occasional series of mishaps. Just after 5 I woke with the crippling sensation that accompanying me in my bed was a pool of liquid. After an exasperated 'oh for fuck's sake' was uttered I took to mopping up the mess. Now this is no teen wet dream scenario for you grubby minded types amusing yourself with such ideas - what had happened was that one of the external plumbing connections that pump liquid food into my stomach overnight through my PEG tube had disconnected (probably caused by my rolling over and twisting it) and was continuing to pump the feed onto my bed.
I did the best I could be bothered to at such an unearthly hour and went back to sleep trying to avoid the wet patch, a manoeuvre I've almost perfected over the years. It is a whole lot easier when you've got the bed to yourself admittedly. I sorted out the plumbing issue but couldn't bring myself to put the feed back on just in case it happened again.
This all happens because I'm actually meant to sleep almost upright when I'm in bed but that only really happens till I doze off and then I slide down and the tossing and turning that accompanies that is what causes the twisting of the tubes, which in turn leads to the, thankfully rare, detachments. It's only happened four times in the year I've had the PEG tube in which is just about the regularity that I can deal with.
How is your weight Paul are these feeds helping?
ReplyDeleteThe feeds have helped massively Phil as they remove the pressure of having to eat so much, which is great because eating normally is actually hard work.
ReplyDeleteI'm not even putting them on every night now and my weight has stabilised at about 54kg.
Good to hear about your weight, If I had the feed connected to my stomach I think what happened above would be a nightly occurrence for me. I'm quite active during my sleep, so I am told :). I would have to think about jamming myself in one position using various pillows.
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