I've been reading a few other blogs recently that are written by other people who have already had their lung transplant to see what I can expect and I have to say that even though I can find lots of material out there from people in that situation they all have one thing in common, the cause.
They all suffer from Cystic Fibrosis and there seems to be a bit of a mutual help structure for those in a similar position to them. Now I know that all my symptoms are fairly similar to theirs and there's a lot more that we have in common than separates us but I feel strangely excluded from that particular group.
I've never really sought the company of strangers who have the same conditions as me before so it's a strange feeling for me to be thinking about it. I suppose I had enough of my family that were au fait with the subject that I could turn to if I ever wanted a chat about the Leukaemia so I never really had to look outside. In this chapter of events though there's no familial point of reference.
Being honest I haven't even managed to formulate what I would even want to ask someone who has either gone through the lung transplant process or is in the same position as I am in waiting for one so it's not really a pressing concern but it would be useful to know that when such things enter my head I have an option.
The medical things I can find out from doctors or from doing a bit of research - it's the everyday, almost trivial stuff I'm meaning. I'm sure all the CF folk would be happy to answer anything I ever have to ask - I don't know why I feel so weird about it.
Paul give my sister a shout if you ever want to chat about things, I am sure she would be happy to answer any of your questions. She has been really busy recently organising a charity ball to raise money for the charity live life then give life. Try not to feel weird about it though as im sure she had the same feelings when she started wanting to ask the online community about what will happen or how she may feel.
ReplyDeleteAll the best Paul.