I've been quiet all this week because I've been sick for all of it. On monday night I was so sick in fact that while I managed to get a sick bowl in time it came out with such force that it sloshed out and on to my shorts. It was an absolute torrent principally because it consisted only of my liquid overnight feed, which I then had to stop. So I've hardly eaten all week and haven't even put the feeds on and as a result I've lost two kilos which is tremendously frustrating. I know I'll put it on again soon enough but it's so much harder and slower to put it on than it ever is coming off.
Still, I had an appointment with the respiratory docs who have confirmed that, even though I had lost that bit of weight, that my referral to the transplant team has now been sent so now I just have to wait to hear from them which will be in the next few months. Then I have to go down to Newcastle for a few days of extensive tests. This is actual progress after many months of waiting.
I can't wait to get down there.
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